Thanks to advances in treatments in recent years, people with cystic fibrosis (CF) are living longer than ever before. Along with this increasing longevity comes some ongoing challenges for patients — from adhering to their treatment plans to managing symptoms to optimize their quality of life. The Cystic Fibrosis Center, through the Division of Pulmonary Medicine at Boston Children’s Hospital, is making great strides in these areas, supporting patients with CF in innovative ways and helping to improve their health and well-being through new tools and approaches that can simplify their efforts and reduce stress.
“Boston Children’s Cystic Fibrosis Center is the largest in New England and one of the largest in the U.S.,” says Gregory Sawicki, MD, MPH, director of the center. “We are very involved in clinical research. In fact, in 2019, our clinical research team at Boston Children’s was the highest enrolling center in the country across all CF centers. We are currently participating in more than 30 clinical trials spanning early-phase treatment trials, phase 2 and 3 treatment trials, and observational and real-world studies. We also go beyond clinical trials to think more broadly about holistic care of patients,” he says.
